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Form_Pageaditya2024-10-17T15:47:40+00:00

Language barriers in US healthcare and clinical trials

Demographics and language barriers

Do you speak another language or know someone who does not speak English as a primary language? We want to understand how important language accommodations can be in helping people trust and understand their healthcare treatments.

What is your preferred email address? *

How old are you?

What is your race or ethnicity?

What is your sex assigned at birth?

Male
Female
Prefer not to say

What language do you prefer communicating in when making healthcare decisions?

Do you, or someone you are a caregiver for, have a chronic medical condition?

If Yes, which one:

Heart Disease (i.e. Hypertension)
Respiratory Disease (i.e. Asthma, Chronic Obstructive Pulmonary Disease, Sleep Apnea)
Rheumatologic diseases (i.e. Arthritis, Lupus
Gastrointestinal Disease (i.e. Ulcerative Colitis, Irritable Bowel Disease)
Endocrine Disease (i.e Diabetes)
Infectious Diseases (i.e. Hepatitis, HIV)
Cancer

Has language or communications ever been an issue or barrier in accessing healthcare (ie. making appointments, understanding what doctors are saying)

Does access to resources in your preferred language increase your trust in the health care you are receiving?

Have you ever been in a situation where friends / family members have served as interpreters at your medical appointment?

Have you ever needed a language interpreter service offered by the hospital to interact with a provider in the healthcare system?

If YES, what platform was the interpreter service given?

By phone interpreters
By video interpreters
By in-person interpreters

What were some of the areas you were dissatisfied with?

The pace of the service was too slow
Interpretation didn’t make sense
Poor audio or video connection made the interpretation difficult
Concerned about a stranger (interpreter) learning about my private health matters
Healthcare Provider did not offer interpreter services

How often do you feel that communications or language barriers have affected the quality of healthcare you received?

Have you ever had a cancer diagnosis?

Have you ever been the caregiver for someone with cancer?

what challenges have you or your family faced getting information about your cancer treatment in your preferred language?

No information was avail in my language
Information was not made clear by interpreter
Interpreter service was not always available when I had questions
I needed to wait a long term for translated information
I haven’t faced any difficulty

If you had the opportunity to participate in a clinical trial for your chronic medical condition (i.e cancer, diabetes, hypertension), would you participate?

If not, what are some reasons that would prevent you from participating in a clinical trial?

Concerned about safety of medication used in clinical trials
Distrust of health care system
Too many risks with no benefit
Potential costs and time away from work to participate in a trial
Afraid of not understanding the complicated system

How would you prefer to access information about your medical condition and treatments, if offered in your preferred language?

Health Care Provider (with interpreter services)
Health care App on your phone
Online resources (Google translate, etc.)
None of the above

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